Alice Wong.
Writer, activist, founder of the Disability Visibility Project, 2024 MacArthur Foundation genius grant recipient.
Died November 14, 2025.
An obituary. A remembrance. Wikipedia. She was 51.
Let us remember Alice Wong. And remember there is always more work to do.
Wong’s obituary was published in The New York Times the day after her death.
On the same day, in a series titled The New Old Age, I was dismayed to find a column titled “Wheelchair? Hearing Aids? Yes. ‘Disabled’? No Way.”
Ways to kill a zombie are legend.
Ways to kill a stigma are not.
Read Alice Wong’s memoir, Year of the Tiger, An Activist’s Life, and the books she edited, Disability Visibility, First-Person Stories from the Twenty-First Century, and Disability Intimacy.
The Sound of a Wild Snail Eating, Elisabeth Tova Bailey’s iconic memoir about one small snail and her own chronic illness. Learn about invisible and dynamic disability.
Pain Woman Takes Your Keys and Other Essays from a Nervous System, Sonya Huber’s essays on disabling pain.
Too Late to Die Young, Nearly True Tales from a Life, memoir by Harriet McBryde Johnson.
Places I’ve Taken My Body, memoir, and The Virginia State Colony for Epileptics and Feebleminded, poems, both by Molly McCully Brown.
Raising a Rare Girl, memoir, by Heather Lanier.
Read Beauty is a Verb: The New Poetry of Disability, edited by Jennifer Bartlett, Sheila Black and Michael Northern.
Educate yourself. Don’t put all of that responsibility on people with disabilities. Many of us have enough to contend with already.